Friday, June 29, 2012

Life with Club Feet & Hip Dysplasia

Vivian was born early so we started out our club foot journey with these fashionable boots in the NICU. The therapist made special boots for Vivian every week.
We first met with our pediatric orthopedic surgeon two weeks after Vivian left the NICU. The doctor used the ponseti method to treat Vivian. The goal was 6 weeks of casting and a posible heel cord release surgery. Vivian was also born with hip dyplasia so she was already in a pavlik harness.
After 6 weeks of casting the doctor decide to do the heel cord release surgery. He also wanted to do a closed reduction on her hip. We got 2 birds with one stone. This tortuous cast is called a Spica cast. If you think the regular leg casting for club feet sucks -think again. This plaster cast consumed poor Vivian. 

After 6 weeks of the spica we were scheduled to get a MRI of the hip and a new Spica. Unfortunately the Spica was not doing its job so Vivian will have to have open hip surgery when she is bigger.
Here she is with her Denis Brown shoes and bar. I hated them. She was wearing the smallest shoes they make (which was not small enough for her tiny feet). Her heels would always slip up. We spent a lot of time fixing her shoes. After two months of wearing these shoes we found out her heel cords had tightened up. We had to do another heel cord release surgery;( I felt awful like it was my fault her stupid shoes didn't work. We did the 2nd surgery the first week of June '12. Next week we are scheduled to get her cast off. Hopefully we can find shoes that fit well and work!!
This is a picture from yesterday. Her casts are purple. 
 I have to put socks on the casts most of time because they tear up my arms.

2 comments:

  1. My daughter was born 7/7/2016 with hip dysplasia on the right hip and bilateral clubfoot. She is currently in casts and a Pavlik. Breaks my heart.

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  2. My daughter was born 7/7/2016 with hip dysplasia on the right hip and bilateral clubfoot. She is currently in casts and a Pavlik. Breaks my heart.

    ReplyDelete